Tuesday, July 17, 2012

 I sit here contemplating, realizing it's been far too long since the last update. This is not one of those things that I really enjoy therefore, I find it quite easy to push off. I know it's a very lame excuse. The up side of it is... I really do have a busy life and I am well enough (most of the time) to thoroughly enjoy it. :)

Remember when I had seen my new doctor in April he turned the batteries down a bit. I was afraid of a set-back, would my body try to conform to some of its earlier positions since the batteries weren't quite as persistent. Turns out it did quite the opposite... with less tension my muscles were able to be more free and I started seeing progress as in I didn't feel so tight. 

I had an appointment with my doctor July 25. He was happy with the way the adjustment in April helped my voice. He noticed a little more of the C shape in my side. I hadn't noticed it myself so we decided that as long as it doesn't bother me we are going to hold off with any adjustments for the time being.

HAPPY NEWS IS: HE DECIDED TO TRY TAKING ME OFF BACLOFEN!!!! Instead of 2 pills three time a day I am now down to half a pill a day. Next Tuesday I will come COMPLETELY off. It has gone so well for me and I am certain I feel better already. His guess was that since surgery my body probably doesn't even use it that much. Why be on it and deal with the bad side affects if I don't need it!! :):):) That's a no-brainer.

The 3rd full week in may (21-23) (almost exactly a year after surgery) I enjoyed three jam-packed days of fun at Camp Andrews. We youth girls wanted to do some of their fun ropes courses so they came up with this cool plan that if we come do some work for them, they will give us a price cut for the courses. It was an awesome experience for me and of course piles of fun! :)

June 28 we had an enjoyable day at The Grand Canyon of Pennsylvania with the fellow ministry      families (minus one) from church. The 16 mile bike trip that most of us took proved to be a highlight.

July 2-6 our church had our vacation bible school. My sister and I taught the kindergarden 2 class. There were approximatly 17 children. We did split them up and have our own classrooms. It made for a busy but fun week.

OK, so that ended on Friday night. We had a rather full weekend and to top it off the youth group left for a work week at the Allegany Boys Camp in Maryland. Such a helter skelter as we raced around to pack and prepare for that. We met at church around 9:00 Monday morning. So thankful to be able to share such great memories with my awesome youth group. As you can guess, it was late to bed and early to rise. I felt good about how well I held up!!!! Some of the work included staining a house (outside), cleaning, doing some library work, and helping in the kitchen for the girls. The guys did some roof work and I'm not sure what else. The first day I did some staining, but because my shoulders/neck were a bits sore that evening, I opted for the easier jobs the rest of the week.
                                                                                    
We (as in my 16 year old brother and 19 year old sister) arrived home from the youth trip around 6:00 Friday evening and decided to join the rest of the family at a Beiler reunion in Cherry Tree . It takes about 2 and a half hours to drive so we scurried around and manged to surprise most of the family when we arrived around 10:30. Other than mom and dad no one expected us till the next morning. I find great joy in surprising people like that. :)   

On Wednesday (June 13) I had an appointment with my nutritionist. I decided to the 3 hour drive (round trip) by myself. It was fun and the BEST visit ever. Her report was great!!! No Lyme, No ecoli, No epsteinbar... No need for more appointments with her for right now. makes for much *H*a*P*p*I*n*E*s*S in my heart.

So... like I said, my life has been crazy. I don't know what all God has in store for me but I do            know that whatever it is, I can trust His plan. I would really like to get a job or two in the near future but there again God knows what I as His daughter can handle. My job is to be patient and allow Him to work His plan. Easier said than done. 

P.S. I started this last Monday already so I hope you can make a little sense out of all the dates and happenings...

Tuesday, April 17, 2012

High Fives to yet another successful doctor visit!!!

I could never ask for a kinder, more caring, SMART doctor. He took time with us. Instead of feeling like "just another patient", I sensed his caring heart. He KNOWS what he is doing. Not only does he adjust and do programming, he can also adjust medication levels! :) We were delighted to find that he has a lot of direct contact with my surgeon and he and my former programmer used to converse back and forth frequently as well.

He did make an adjustment. Rather than turning me up though, he actually turned me down a little. I had been having problems with my speech. My throat felt tight and I had a hard time pronouncing my words. My speech sounded slurred. He noticed my right side was up a bit higher than my left so he turned it down till they were the same. It was amazing how fast we noticed a difference!!! I admit to feeling a little unsure about it. I was scared I'd see a decline in other areas of my body. I had gone to be turned up, not down. However, I feel confident he knows what he is doing, he has my trust. So far I have been feeling fine.

He wants us to report back to him in several weeks as to how things are going (doesn't that sound like a caring doctor?). Our next appointment is the end of June. From what I understood I still have a lot of room for adjustments, which is encouraging and, given time he feels that I may very well be completely off all medications and such.

No words can describe the peace, the joy, the happiness, the awe and the amazement I feel in my heart when I realize ALL that our GREAT God has done in and through my life. At the same time
it's humbling, especially when I think of the way God has used my testimony, my story to touch so many lives. My prayer is that HE would receive ALL the glory and praise, believe me, it's NOTHING that I've done, but EVERYTHING that He has done.

I would like to close with a quote I read recently... So true...
*When trials come your way, God will draw you close to His heart. If life is always going smoothly, comfort is meaningless; but when you're in the midst of trouble, He comes alonside with tender love that overflows your trials and reaches out to others.* ~Pamela McQuade

Saturday, March 31, 2012

I just LOVE the way God works!!! He NEVER ceases to amaze me!!! I feel so full and blessed this morning!

The past few weeks I have felt an increasing need/desire for an adjustment made with my battery. The problem... where to go, what to do. I kept praying about it. Last weekend I began having extreme pulling in my left side (mostly arm and hand, some leg as well). Sunday evening it was to the point that I could hardly type and writing and such was quite difficult. My throat also tightened up. Anyway... I came to a fast realization that something needs to be done and SOON. So dad got on the phone. He called the office where my first programmer practiced and told the nurse there the dilemma we were in. She gave us the number of another programmer. Thursday morning he called the programmer and after a brief talk he gave the report that the nurse would talk to the doctor and get back with us. She also told us that due to receiving quite a few of Doctor Jaggi's (former programmer)patients they were booked into June. However, with my urgent need in mind she would talk to the doctor and get back to us. Thursday afternoon she called, due to a cancellation they can take me APRIL 16!!!

I am amazed how relaxed my muscles are, but am SO happy to think that I am ACTUALLY going to see a programmer again! It's been nearly 8 months since I've been adjusted. Oh, yes, and according to a little online investigation, I am BLESSED with another experienced, kind-hearted doctor.

I'd like to leave you with this verse...
And we know that ALL things work together for good to them that love God, to them who are the called according to His purpose. ~Romans 8:28

Wednesday, March 21, 2012

THANKS FOR PRAYING!!!!! I am indeed LYME FREE. Did you get that...?! I'm LYME FREE!!! :) Praising God for the miracle He sent my way! :)

I hope to be able to give a little more detailed version of my the life in the near future! Thanks in advance for your patience. :)

Tuesday, March 13, 2012

Please Pray...

Next Wednesday (March 21) I plan to see my nutritionist. My biggest request would be that I could test lyme free.:) I've been feeling some better the last few weeks and hope that means lyme has left. Also, pray for wisdom as we decide which supplements we should stay on and which ones would be okay to drop.

Thanks so much!!!

Friday, February 3, 2012

Thanks once again for praying.

Doctor visit proved to be partially successful in that I am in the process of coming completely off of R-Tain (my main medication). I will wait a little yet to do anything with the baclofen. I am so excited and hope my body will cooperate and adjust well to this change. :)

Programming... the reason for only partial success... He did not want to do any adjustments. He thought I looked good. I have another appointment in May. To be completely honest I was ok with that. I don't quite trust him, I just want Dr. Jaggi back. Please pray that I could trust God in all of this.

On a side note... with my sister off at CBS I am babysitting for her (an 18 month old ADORABLE boy). I'm hanging out with him at his house today and he is not too appreciative when I spend too much time on my computer. :)

Monday, January 9, 2012

I hope this finds everyone enjoying 2012. :) I sure have been. Dealing with my Lyme continues to be somewhat of a challenge, but I've decided to hang on to the good days and enjoy them and deal with the bad days as they come.

I would appreciate your prayers as I plan to go to Philly the end of this month, January 25 to be exact. :) I have an appointment with a neurologist from there in hopes of bringing my medication intake down. I was also going to meet with my programmer again, however we received a call the end of November that he had a stroke and is no longer able to do the programming. We were told the neurologist is doing the programming for right now. Dr Jaggi had been in practice for over 26 years and seemed to know just what to do. I admit to feeling rather apprehensive when I think about having someone else do it but God has a plan for this and I must choose to trust Him.

I had the privilege of substituting a few hours for the 2nd and 3rd grade teacher on Friday. It was fun being back in the classroom like that. :)

This blessed me when I read it this morning...
*"It's for you I created the universe," Say's God. I love you. There's only one catch. Like any other gift, the gift of grace can be yours only if you'll reach out and take it. Maybe being able to reach out and take it is a gift too.*