May 1, 2010

Dear Family & Friends

Greetings to you. It's a warm sunny day.

We were all blessed with a good night of rest. By last evening Crystal was very sore & her body ached but she slept well.

The Dr (her Neurologist)who specializes in giving Botox actually opened his clinic yesterday just to treat Crystal. He knew we were desperate for help. He wanted her to be sitting for the test & treatment. The test consisted of about 15 different pricks to see which muscles are twitching. She lasted for 5 then needed to lie down because she felt lightheaded. He decided that was enough, because when lying down the muscles do not twitch as much. Dr. Frienedburg was able to give her the Botox shots lying down. He gave 4 different shots in the neck muscles.

The amount of Botox is a trial basis. He wants to see how her muscles react to this dose and said he will be in contact with us in 2 to 3 weeks then decide whether she needs more.

Probably the hardest trial for Dave & I was the fact that it could take up to 2 to 5 weeks till we see much results. And beyond that there are still some uncertainties as to how well her body will respond and to the ongoing process of treatments. Dr Frienedburg said his average patient needs to be treated every 3-6 months with the exceptions of some going into remission, for a period of time. As we consider this and the cost of these treatments, as well as the fact that at least in medical terms; it is incurable and something she may need to live with the rest of her life, it seems a bit overwhelming. We are convinced God Almighty is the Healer and has the power to bring results. We believe that he is able to heal if he so wills. We also know his grace is able to carry us through with whatever He chooses for us.

Pray that Crystal would be granted patience. For an 18 year old that is out-going, and loves being around people, this is a real challenge. At this time she is pretty much on the sofa all day. Just eating a meal at the table is a challenge for her.

Pray that God would give us wisdom in possibly finding other methods to treat it.

I can do all things through Christ which strenghtheneth me Phil. 4-13

Thank you all for your prayers and support, Dave & Rose