May 20, 2010

Dear Friends and family,

A few lines to let you all know how our week is going. This week Crystals involuntary movement has moved to more parts of her body, particularly down to her stomach muscles. It is now to the point where walking is a major chore and in fact needs help at times. We had contact with Dr Friedenburg ( her Neurologist) the last several days. We had another appointment with him today with the intent of doing another Botox treatment. After seeing her condition he decided against giving her more Botox because of the extreme change and progression of her movements. He made arrangements to see another specialist tomorrow at Wilkes Barre Medical Center. He also had us see an Ophthalmologist today to check for several things, particularly for Wilsons disease (a disease in the brain and nervous system). That exam came through clear. To us it seemed, Dr Friedenburg was at lost in knowing what to do.

Crystal has had a rather rough week. She is again having some pain at times and the severity of her movements and the many unanswered questions have caused much frustration; although she still has her very cheerful moments.

Please pray that somehow she could have some relief from her misery and that God would give the Doctors wisdom in knowing what to do.

God does sent sweet little miracles along the way to let us know He is with us. Today while at the ophthalmologist, the question was how will he ever be able to do the exam with her severe movements. Crystal said there is no way the Doctor will be able to get this done today. As prayers ascended to our Heavenly Father on this behalf God performed a miracle right before our eyes. For several minutes straight her head and body held almost perfectly still for the exam. Thank you God for these confirmations.

I would like to share two paragraphs of a long poem sent to us by friends. This well expresses how we felt leaving the hospital today with no further answers.

Wait

Desperately, helplessly, longingly I (we) cried:

Quietly, patiently lovingly God replied.

I pled and I wept for a clue to my fate (Crystals fate)

And the Master so gently said,

"Child you must wait"

Wait? You say, wait!" my indignant reply.

"Lord I need answers, I need to know why!

Is your hand shortened? Or have you not heard?

By faith, I have asked, and am claiming your word.

We want to by faith continue to cling to Gods promises. He does and has sent many blessings already even in the midst of this trial.