May 22, 2010

Dear Friends and family,

A few lines to let you know how we made out yesterday. We took Crystal to Wilkes Barre Medical Center Yesterday to see another Neurologist. (Dr Condefer is a lady doctor). She seemed more knowledgeable with Crystal's condition. She said Crystal still has a form of Dystonia although it is no longer considered Cervical Dystonia because it extended into more parts of her body. At this point her main goal is to try to discover what type of dystonia she has and then try to find the cause. She took more tests yesterday. I'm assuming to test for other possible diseases. We are scheduled to have an MRI done next Thursday. She said hopefully that will help to discover some things. We had hoped to have an MRI done sooner but because she needs to have anesthesia, it makes it more difficult to schedule. Geisinger Medical Center only does MRI's with anesthesia Tuesdays and Thursdays. Dr Condefer tried to get us in at Wilkes Barre sooner but was not able. In the mean time she put Crystal on a medication to try to relieve the intensity of her involuntary movements. Dr Condefer said there will be no quick and easy fix to her condition. We are trying to do all we can to make Crystal as comfortable as possible, but feel so helpless. We brought a hospital bed in our living room for during the day to try to make her more comfortable.

As a family this has brought a lot of change into our lives. As for Crystal, she is struggling with discouragement at times. Pray that God would give her courage. As parents our hearts are TORN to watch her struggle. Pray that God would help us, together, to see through the eyes of faith and help us see beyond our present struggles.

We thank you all for praying. She does enjoys short visits. It brightens her day. Thanks to the many that have done that.

Dave